Prader-Willi Syndrome Association of Australia

Prader-Willi Syndrome Associations (USA)

Foundation for Prader-Willi Research

Prader-Willi Syndrome Associations (UK)

Prader-Willi Syndrome Association of New Zealand

International Prader-Willi Syndrome Organization

Prader-Willi Syndrome Association of South Africa

MEDICAL ALERT
There are a number of medical conditions which may affect people with Prader-Willi Syndrome. Both the UK and the USA have a comprehensive list of these on their websites.

http://www.pwsa-uk.demon.co.uk/medalert.htm
and
http://www.pwsausa.org/medalert.htm

We may add to this that in Queensland with our high summer temperatures we may also have to watch out for sudden overheating.

GENERAL BACKGROUND INFORMATION

Diagnostic Criteria for Prader-Willi Syndrome

The Genetics of Prader-Willi Syndrome: An Explanation for the Rest of Us

Using Medications as a Management Strategy for Persons with PWS
Barbara Y. Whitman, PhD, Prof. of Paediatrics, St Louis University School of Medicine.